Words have power--to heal and to harm

The receptionist spoke in a hard voice. “Your son will be there, but you are not welcome at the appointment.”

“But he’s only twelve.”

“You can wait outside,” the desk worker stated without inflection

I felt my world shrinking, the walls of fear and ostracism closing in tighter around me. This wasn’t the first time I’d had this sort of reaction for no discernible reason. For years, reactions to me have become harsher and judgements of me more negative, even with strangers.

What had I done? I barely knew them. Sometimes it feels like there must be a sign emblazoned on my face, which I alone cannot see, declaring that I am a horrible person. My developmentally disabled child needed the medical therapy provided by this clinic, so I went ahead with it despite the humiliation and lack of clarity.

Creative commons by michael karrer

I took a deep breath and forced myself to stop thinking negatively, to focus on solutions rather than problems, to recognize that I’m doing what I have to for my kid with complex needs. I told myself it probably wasn’t me at all. Maybe they were having a bad day. I steeled my voice and words to remain courteous.

Afterward, I was careful not to dwell on the issue of being banned from my son’s medical appointment. I do meditations on gratitude, positive self-image and mental protection each morning without fail. I believe in that stuff—not slavishly—but I have seen that attitude counts for a lot and meditation provides vast reservoirs of self-mastery.

Yet, I suspect that it is the very laws of “positive thinking” that have been undermining me. There isn’t a sign on my forehead, but I have been absorbing a lot of negative energy—not by choice, but nonetheless.

I am, at the very least, living with kids who have undergone massive trauma which has caused significant psychiatric disturbance. A major symptom of that disturbance is that they spew insults and verbal abuse at the person in closest relationship to them (and that’s usually me). The children I adopted spent some time in Eastern European orphanages, and like many with that experience, they develop very conflicted responses to anyone who takes on the role of a parent.

The modern gurus of “manifesting one’s own reality” love to talk about how positive thinking can reshape even the hardest situations. They tell us to repeat affirmations three times every morning, in order to embody good qualities or to encourage good things to happen. If you repeat that you are loved and wealthy and successful, you will by virtue of “good vibes” attract a loving partner, make more money and have career opportunities showered upon you. Or at least you’ll have more of that sort of thing than you otherwise would have.

Both empirical scientific studies and a great deal of anecdotal evidence show that—mostly—it works. Whether you think positive thoughts, hear positive things from others or even listen to a recording of a stranger saying generalized nice things to you, there are dramatic health, social and sometimes even financial benefits.

Some people believe it works because of magic or “energy.” Others believe that a person with a positive self-image simply attracts positive reactions from others due to psychology. It’s science then… if subtle psychological science.

The weird, rejecting reactions I’m getting could be based on negative thinking. The proponents of manifesting reality say that people who think negative things create “self-fulfilling prophecies.” Maybe I am to blame after all in a round about sort of way. If positive thinking has real beneficial effects, then a person experiencing something negative probably just needs a more positive outlook.

Both scientists who study positive thinking and the affirmation gurus agree that negative thinking can cause detrimental health and social effects. If one is constantly pessimistic or under chronic stress, the immune system is suppressed, one is likely to appear less attractive or competent and one will have less motivation to do necessary things that promote physical, economic and social well-being.

The problem with this theory is that I have always been optimistic, motivated and self-confident. Early on, it might have been partly naiveté, but it was also enthusiasm and sheer belief. That positivity carried me through quite a few scrapes I had no right to glide through unscathed.

When I was a young journalist, I was dedicated and utterly convinced that if anyone could break into the Big Time of international newspaper reporting, I could. Physical setbacks and the industry-wide restructuring after 9/11 finally forced me to change my goals, but I managed not to take it as a personal failure.

When I wanted to have kids and the first warning signs of health problems arose, I sat in the waiting room at the fertility clinic overflowing with gratitude that I was only there briefly, that I wouldn’t have to suffer the long battles I saw so many of the other patients undergoing. When I failed to bear a child to term over a devastating six-year struggle nonetheless, I moved on to adoption with the unquenchable optimism of my fire sign. I knew that despite the perils, I would succeed here.

If solid belief in one’s capability and propensity for good fortune was truly the key to success, I should not have encountered so much hardship on my path. And when I did, instead of giving up or becoming bitter, I took up meditation and spirituality to carry me over troubled waters.

The thing no one wants to admit in positive thinking theory is the impact of negative statements from others. Just as listening to positive things said about you bolsters health and resilience, the reverse also holds true, especially with a lot of repetition.

We see that effect in advertising, which leads to poor body image and a host of health problems, even if one dislikes and distrusts advertising. And there the statements are subtle. It isn’t even saying explicitly, “You’re fat and ugly. Buy this if you want any hope of being worthy.” It merely implies that, and we have seen the social impact of that kind of psychological programming.

Still, it is rare that proponents of the theory of “thought created reality” acknowledge the influence of a consistently negative environment. It’s understandable that this is downplayed. After all, you can sell books and recordings with positive affirmations or even with warnings against negative thinking. You can’t sell a way to avoid a negative or abusive environment. But just as positive thoughts and words create reality, the constant drumbeat of denegration and ostracism can drive a person’s health and fortunes down.

And just as with those recordings of generalized affirmations from strangers, it doesn’t entirely matter if the negativity and verbal abuse comes from a credible source or not. One insult from someone deeply loved and respected could have a big negative impact. But even from a stranger, someone you don’t believe, or in my case, from a traumatized and immature source, a constant stream of insults takes a heavy toll.

A few months ago, someone did a straw poll in an international support group for caregivers of kids with similar disabilities, where verbal abuse of caregivers is one of the top symptoms, along with a need for constant supervision, rages and difficulty with empathy. Most of the parents and caregivers who had children with this type of disability for more than five years had developed serious chronic health problems that had not existed before.

The old childhood adage goes “sticks and stones will break my bones, but words will never hurt me.” But that turns out not to be as true as we would like. One word or two or even three certainly shouldn’t break the psyche of a healthy person. Positive thinking, meditation practice and other supports can all mitigate the stress of verbal abuse. But if they are relentless and constant, degrading words will wear away the most solid shield.

It isn’t all or nothing though. I had troubles before the verbal abuse began. Some of my difficulty in breaking into highly competitive field of international journalism stemmed from discrimination because of my disability and because I was a woman and because I wasn’t from a traditional publishing-industry family. But I was treated with respect and appreciation by most people, nonetheless.

My initial health problems were likely just a fluke of genetics. But there was a time when my adopted children were very young that some people close to me began to denigrate me with insults and prejudiced statements about my ability to parent with a vision impairment. This spread to others ridiculing anything I said about current events, because I was a mom with toddlers and no longer a somewhat successful journalist.

When my kids were little I was careful not to expose them to derogatory words, and that made it all the easier to tell when they repeated the words of those who derided me. And because of their trauma and developmental disabilities that pattern of verbal abuse grew and grew. It also grew because of the aura of negativity each successive wave of degradation wrapped around me.

Despite my fiercely positive attitude, this negativity wore away at my mental and spiritual defenses, until my health started to mysteriously deteriorate. Today, I can see the dramatic effects with complete strangers, like those at the clinic.

The automatic response of most people when I speak today is to discount and dismiss at the outset. It doesn’t help that my children’s attachment trauma affects only their closest relationships, and like many children with this kind of history, they put on an angelic mask around others. It is hard for outsiders to believe the verbal abuse is as extreme or as persistent as it is.

Several people working with my kids professionally have become staunch allies over time as they have seen the truth of the situation, through personal experience with us. And yet, there is something around me that picks up negativity, distrust and blame like lint in a dirty clothes drier.

I often feel the exhaustion and sickness creep over me late in the day and I berate myself for my thin skin. They’re just kids. It’s a symptom of disability. They don’t understand half the words they’re repeating. Neurologically, they can't imagine themselves in someone else’s place and understand how they would feel if these vulgar insults were hurled at them day after day.

And yet… it’s like affirmations, except in reverse. I can’t help but be affected.

In my positive thinking, I’m always trying to find some silver lining to bad situations, and throughout all this I have learned a lot. I’ve learned that words can be violence. Words truly can heal and words can harm. I feel powerless at times in the face of so much loss.

But it is worth remembering that words have power. As long as one can speak or write, that power cannot be entirely revoked.

Still dressed up: Greeting unknown humans with stubborn positivity

I was waiting my turn at the check-in desk at the chiropractor’s office on Samhain (that’s the day after Halloween for non-Pagans). I can’t see much with my funky eyes, so I don’t know precisely how it happened—whether the receptionist glanced at me or what—but the person ahead of me turned around, looked me up and down in an exaggerated way that even I could see, did a dramatic physical double-take and declared in a negative tone, “Watch out! She’s still dressed up!”

I was a bit taken aback and befuddled, so all I managed was to mumble, “I’m not actually dressed up.” The lady turned back around and ignored me, finished her business and left.

Image via Pixabay - Image of a woman’s face covered with colorful paint

When I shared this experience, a lot of my friends expressed shock and outrage or said I should have made a witty comeback. I wish I was that quick on my feet and I could think of several afterwards, ranging from, “Well, at least my costume doesn’t impede my ability to be polite!” to “I’m so glad you noticed!” with a little faux preening. But unfortunately, past social trauma makes me go into deer-in-the-headlights freeze mode when things like this happen out of the blue.

So, my witty comebacks are usually all for naught. And the truth is I wasn’t that upset about the comment itself. Afterwards, I could certainly see the argument of several friends that it is never okay to randomly comment on a stranger’s appearance. That really is social skills 101.

But I can’t help pondering more deeply. I was clean and had street clothes on. I was wearing a head scarf of no particular cultural background. I wear them as a personal reminder of oaths to my gods, so it is a bit of a religious head covering, but frankly, I also wear it because I have bald spots that often show, despite having long hair.

I was also wearing a colorful tunic and a long black sweater over it that could have been mistaken for a very vague imitation of something out of Harry Potter. And of course, I was carrying a white cane.

So, more than a witty response, I wish I’d asked, “What part makes you think it’s a costume? Really. Just curious.”

Was it the colorful headscarf and shirt which only sort of matched because they used the same color combination but in different patterns? Was it the black leggings and sweater? Or was it the white cane?

I did see a meme about a pilot dressing up as a blind person, using a white cane as he boarded the plane and entered the cockpit in front of passengers. I’ve got to say that I hope that wasn’t why she thought I was in costume, because that’s not okay. If dressing up as Pocahontas isn’t okay, then dressing up as a blind person isn’t either. The same type of disrespect is involved.

If it was either of the other two or a combination… Well, I guess that would imply a bit of small-town thinking on the part of my fellow sufferer of back pain. But I expect my getup would not have generated much comment in a larger city, even if manners didn’t censor most people’s impulses. I have certainly dressed in more flamboyant things and rarely get a comment.

Maybe that’s just because my outfits are considered so outlandish that it’s awkward to mention it. And really, since I’m not applying for a job, that’s okay. I try to tone it down a little when I go to advocate for my child’s special education needs, but otherwise those who dislike my free-spirited, definitely-not-up-to-date fashion sense too intensely are welcome to weed themselves out of my overly chaotic life.

The truth is I’m just tired of trying to please people all the time, especially when it appears to have no effect on anything. I know that I have some disadvantages in social stuff by being visually impaired. I can’t make eye contact. I can’t recognize people. I can’t smile and wave at acquaintances.

That all creates a lot of awkwardness, some hard feelings and misunderstandings at times and so forth. But I make sure to tell people this. And I smile a lot. I devote a lot of time and attention to making sure sighted people will feel comfortable with my expression and hedging my bets on whether or not I know them, as well as when and how to ask them to let me know who they are in a sensitive way.

An unflattering selfie of me to show what I was really wearing at the chiropractor’s office

But mostly I just try to be friendly and positive. With all the bureaucratic, medical and special education stuff my kids and I have been dealing with I have to see and interact with a wide variety of people every day, many of them strangers and many of them acquaintances who have seen me a few times. I smile and do small talk when appropriate. I I give complements whenever I can find a way that isn’t awkward. I may be frustrated with their whole bureaucracy, but I still smile and compliment the person in front of me.

And yet, the responses I get from people are so often negative. There are a few exceptions, but they aren’t friends. They’re just people who are polite and friendly back at me. And they are definitely a small minority, one in ten or so.

Some days I do worry that this is all because of me. Is the negativity of my circumstances so intense, that no matter how much positivity I put out, it hangs on me like a stench? Are my clothing or grooming choices truly just beyond the pale? Are my eyes and lack of eye contact so disconcerting that most people can’t get past it, despite gentle reminders that I’m not doing it on purpose?

All that wondering leads to a lot of anxiety and self-doubt. But I remind myself daily that it also leads to naval gazing and self-focus. The truth is that people are mostly wrapped up in their own troubles and likely not paying that much attention to me (or anyone else).

But that leads me to the final option for why I run into so much negativity on a daily basis. If it isn’t me but I’m still encountering negativity constantly, then it’s just out there and everyone is suffering from it. That may be a psychologically healthier way to look at it, but it’s also way more disturbing.

With the crises of climate change, war and so much trouble in the world, I could wish the negativity was due to something simple like my fashion choices. If it is true that the world is just full of so much resentment and isolation that everyone is experiencing what I’m experiencing from others, we’re in bigger trouble than I ever imagined as a young activist for positive changes in the world.

How do we stand a chance at ending wars or reversing environmental destruction, if friends rarely meet in person, people don’t form new friendships beyond school, people look at strangers with judgement and resentment first and a circle of trusted friends or family is a rare luxury that few experience?

I fear that this is the real reason for the social isolation I experience and for much of the big troubles of our world. As much as I was frustrated with older people who said things like this when I was a young activist, because I wanted big changes first. I see now that we will never manage any lasting or worthwhile big changes until people make changes in their spirit and how the relate in community.

I can tell you from the experience of someone who could never see other people’s faces so the world is eternally full of probable strangers, that it is hard to keep smiling kindly, keep greeting people with generosity, keep open the belief that the next vague unknown form you meet may be a dear friend. It’s hard but necessary. When sighted people—when enough of everyone—starts greeting the world the way well-adjusted blind people greet the world, maybe, just maybe, we’ll have a chance of solving some big problems.