Make a scene: From bystander to assertive witness

At dusk on Monday evening, I set out for the ESL class I teach a mile and half from home. I rode the diminutive two-wheeled electric scooter that I use to get into town, puttering around the corner by the store run by a Vietnamese family.

I can't drive a car or ride a bike in traffic because I'm legally blind. I can see well enough to navigate safely at walking speed on the sidewalk but not much more. And due to a joint and bone condition I can't walk more than half a mile without intense pain that lasts two days. So the scooter is the best way for me to get around.

Creative Commons image by Arimeq of Flickr.com

Creative Commons image by Arimeq of Flickr.com

As I passed the store an angry shout stopped me. "Get off the sidewalk, you stupid cow! You get in the road, right now!" A man was screaming at me in a harsh, ragged voice from a house across the street. 

I knew even then that most people would say I should ignore him and keep going. But as soon as the words hit home, I couldn't hear or see, even as well as I normally can. I recognized the symptoms of a PTSD trigger and struggled to fight the wave of dizziness and disorientation. That meant first I had to stop to avoid running into a lamppost.

"I'm calling the police! You should be arrested, you pig! Get off the sidewalk with that scooter!" The man was still yelling. And I had heard the same thing from another man just last week. In this small town, rumor travels fast and there seems to be an epidemic of people accosting me about my mobility device. 

To be clear, I have been very careful in the year since I've had this scooter. I've never come close to bumping a pedestrian, even though many of our sidewalks are no more than a foot wide. A wheelchair or a standard disability scooter with three or four wheels could not navigate on the sidewalks here and the few people who use such devices travel in traffic. But the traffic is also very bad, crowded and fast. It isn't safe for a person who can't see well. I have small children who still need an adult to accompany them to school. I have no real choice about whether I use the scooter or where I use it.

I have been afraid that people would judge me harshly and so I have made an effort to yield to anyone else on the sidewalk and to go extra slow around dogs and small children. Yet finally my fears have been realized and s group of people are lobbying the city to forbid me to use any wheeled mobility device on the sidewalks. 

"Do you want me to come down there and push you into the road!" The belligerent man threatened. 

I know what my husband and my friends would say. "Just ignore them. Mainly, don't make a scene. Whatever you do, just don't make a scene."

"I can't ride in traffic. I'm visually impaired," I finally called over to the man.

"Then stay the f--k home!" he fumed. "I'm dialing the police right now!"

"Fine. I'll show them my disability ID," I told him and moved slowly, shakily away.

I couldn't exactly make out the figures of people in front of the store several feet away or the figure of the man yelling at me. But I could hear by the shuffling of shoes on pavement that there were witnesses. By their quiet shuffling, I figured they were embarrassed and also hoping to avoid "a scene."

Creative Commons image from Aidan Jones

Creative Commons image from Aidan Jones

I have made a scene too many times in my life. I have been told over and over again not to make a scene--by my mother, by my husband, by my friends. Mostly I try not to, but there are times when a scene is just what is needed.

For the first 20-odd years of my life I experienced extreme social ostracism and isolation, which resulted in a kind of long-term PTSD, which is different from most PTSD because it doesn't stem from one traumatic incident but from repeated threats over the long term.

The result is that when I am threatened with social isolation, my brain shuts down. I cannot think clearly and talk my way out of the difficulty. Instead my brain can only do fight of flight. And that often means I scream back at whoever is harassing or threatening me and sometimes at anyone at all, if the attacker has managed to make him/herself scarce. The result tends to be more social isolation. Who wants to be around someone who is always making a scene after all?

In this case, I managed to fight the PTSD symptoms. I have been working on that. After 20 years of trying, I can finally respond relatively calmly... sometimes.

But the thing that stands out to me most painfully in the entire incident is not the belligerent man, but the bystanders.

I cannot count the number of times, I have been harassed, belittled, demeaned or even physically attacked in public due to my disabilities and bystanders have been silent or even made excuses for the abuse. I have been told I should not be allowed to have children, because clearly a visually impaired person cannot be safe with children and I watched with helpless horror as a group sat around discussing how valid that prejudice might be, while I was told to be quiet and allow others their say about my validity as a parent.

I have made many scenes, but I have also waited, hoped and prayed someone else would make a scene first.

When I saw the video of Sam Carter, the lead singer of the heavy metal band Arcitects, stopping a concert and making a scene (including quite a few F-bombs) because he just saw someone sexually harass and grope an unwilling woman in the crowd right in front of him, I started sobbing. The same thing happened when I read the story about waiter Michael Garcia who told a diner he could no longer serve him after the man said loudly "Special needs children need to be special someplace else" in a Houston restaurant where a five-year-old boy with Down Syndrome was eating with his family. 

These are rare and famous incidents. It is unfortunate that they are famous because they are rare.

There are a few more incidents like this though that weren't caught on video. Some years ago, I was riding a street car in Prague when I noticed a white man who was clearly intoxicated harassing two young, dark-skinned children. There have always been issues with pickpocketting on the street cars and dark-skinned people are often blamed. But these children were standing away from other people and wearing school backpacks.

I went up to the man and tried to put myself between him and the children. I told him to stop. He pushed me roughly out of the way with astonishing strength. I turned to the other passengers on the street car, who were sitting quietly with their faces averted. I asked them to help and then turned back toward the man who was pushing the children physically toward the exit. The street car stopped with a jolt at a station and the doors opened. 

I told the man I would call the police and demanded that he stop harassing the children, who were clearly younger than 10 or 12. Instead he grabbed the backs of their necks and threw them out of the street car. The driver, apparently wishing to avoid a scene, slammed the doors quickly and started the street car moving again. I did call the police and they said there was nothing they could do after the fact unless the street car driver was willing to get involved, which he was not. 

Often making a scene does not stop the harassment or abuse and thus many people tell me it is useless and a worthless waste of energy.

Creative Commons image by Tamara Craiu

Creative Commons image by Tamara Craiu

I can't speak for those children because I was never able to locate them again, but I for one would not feel it was useless if a bystander had stood with me against the threatening man harassing me on Monday night. 

It is easy to say we are against racism, sexism, ableism, homophobia and all the rest. It is not easy to stand up and make a scene, to call a stop to harassment, ostracism or prejudice. It is in many situations damn scary.

I have been a bystander and I have sometimes stood up and sometimes things have happened too fast. I was confused, was afraid or had my own PTSD to deal with. I have wished I had been quick enough to say something or simply show by where i positioned my body that a vulnerable person did not stand alone. Sometimes I have managed to do it.

Once when I was a college student and I was first able to go out to a bar for a drink, I stood at a bar waiting to be served behind a group of three Black women with British accents. The bar tender was serving drinks to people in front of them but then he skipped them and asked for my order. I was shocked. I had talked to the girls and knew they were waiting to order. I slammed my fist on the counter and demanded that he serve them immediately. (This was even before I'd had any drinks, mind you.)

Certainly, there can be times when making a scene actually embarrasses the person you are trying to defend or the person is so triggered by past trauma that they do not realize you are trying to help and they lash out against you. But I for one am certain that some attempt to stand with the vulnerable is better than no attempt. We are not perfect but we can stand up for our tribe. And if our tribe is multi-hued and many splendered, then this is what we must do.

A friend told me about a recent incident in which she was out with a friend who has a condition that causes her eyes to move strangely. A child came up to her in a store and said, "Your face is ugly and you have weird eyes." The woman threw down her shopping and ran out of the store crying. 

I do understand. I have been told many times that my face is not appealing and my eyes appear strange. I have overheard conversations and simply watched as groups of people turned away and excluded me. When you live with a vision impairment or other condition that makes your face different from those around you, it is a common enough problem.

My friend went to the child's mother and told her what had happened. The mother replied that the child's words were simply true and not harassment. My friend objected and asked her to teach her child not to comment on people's bodies or... well, she would have mentioned skin color, except the mother and child happened to be black and she assumed they already knew that.

We are all fallible and small children do say things that are insensitive without understanding.  I have heard the understandable anger of black people when a small white child commented loudly that someone's skin "looks like chocolate." They rightly say white parents should teach their children to refrain from making stereotyping comments. The same applies to all people when it comes to commenting on disabilities and body differences. It isn't necessary to shame children over insensitive comments but it is necessary for witnesses to say something.

What is important is not that we never make a mistake or that a child or even an adult never speaks or acts out of ignorance. What is important is that when you know better. you stand by those who are vulnerable. Stand up and if necessary you should indeed make a scene.

Slogging through to gratitude

What does the abortion debate have to do with gratitude? They both strike at the core of what type of spirituality you practice, for one thing.

You are probably as sick of the argument as I am. It rages on with passion, hate, violence and self-righteousness on both sides, though the facts surrounding the issue haven't changed in thirty years.

It isn't just about being "pro-life" or "pro-choice" depending on one's religion. There's the disability rights angle. There's adoption. There's overpopulation and environmental crisis. It is an issue with tendrils reaching deep and wide.

I'm a person with a significant physical disability. I can easily imagine the sheer rage experienced by those who live with disabilities that are widely considered "abortable," in that many people think a child would be better off dead than living "that way." 

I'm also an adoptive parent of two children who never went home from the maternity ward. Their birth mothers did have reasonable access to abortion as a possibility in a country with universal health care, but they did not make that choice. 

I might well have some strong opinions on this issue, but I find that I am not firmly on one side or the other.

I am a woman. Yes, I think women and all people should be allowed to make their own choices. I become irritated when men dictate what women should do with their lives. I know women who were raped and then shamed for it--assumptions made about them. I have a capacity for feminist fury.

But I am not pro-choice at all cost, even so. I don't think there is a clear line between unborn and alive. 

I'm not pro-life or pro-abortion in this. It is more that I am anti-back-alley-abortion. On the surface, it's as simple as that. I don't think abortion is any great thing. Overpopulation is a serious issue, but still if we respect any life we should respect all life. 

Yet I know the results of anti-abortion laws. Throughout history and geography they do not generally result in fewer abortions but rather in more risky abortions and more deaths from infection and accident. That's my primary stand on the issue in terms of society, laws and politics.

In terms of ethics... well, it does come down to religion for me as it does for many people, except my ethics are different from those preached by that brand of Christianity that is so sure of its single, universal "truth.".

In the most recent debate I witnessed on this issue, a woman was lecturing on scripture and the "fact" that God is the only one who can choose to give life or to take life away. She said that makes abortion wrong, no matter what, and makes the pro-choice stance immoral.

This was at least a calm and rational argument. The comments were kindly but firmly put--an assumption that everyone must agree with the scriptures running through the text. The only question open to debate was the interpretation of those scriptures.

But what if you don't accept the most basic premise. How so God is the only one who can take life away? What did you eat for breakfast this morning? If it contained meat or even eggs then you clearly participated in taking life away.

And what about wheat or vegetables? I'm looking at you, vegetarians on moral grounds. How can you prove that those lives--the lives of plants--are different and that you can take away those lives so that you might live but not another kind of life? I know there are lines in those scriptures taken to mean that humans are above the rest of nature, but again I do not accept those scriptures as proof. You must find something beyond human constructs to insist that humans are above all others.

I do understand that if one's religion takes the stand that God is something outside of you, not within each living being, then the issue of abortion becomes highly divisive. However, we have to accept that not everyone shares our religion and if they don't, then it makes no sense for them to be bound by the same scriptures.

My religion mandates that I have to work every day to ensure that I take no more life than I truly need, that I am not a force for needless death and destruction. I have to be conscious about the fact that other beings have to die in order for me to eat, have shelter, stay warm, read, use the internet and so forth. I have to try to give back in kind. 

And I have to give thanks, consciously and openly.

That's the law of my religion. Very few people follow this law and if I respected only people who do or insisted that all people must abide by it, I would be made ridiculous. I accept that it isn't the law of someone else's religion.

For me God or the Gods are not entirely separate from us. They also don't force anything upon us. In the end, every decision of ethical value is fully in our hands. If we had no choice we would also have no ethical responsibility. We are not forced to have a child by some external will of God and so we are truly responsible.

By being alive we make choices, including the choice to continue living. We choose and we must accept in every moment of our lives that we have come to the situation we are in through a combination of circumstances and our choices to accept or reject those circumstances.

All possibilities may not have been open to us. The poor have fewer choices than the rich. Money equals the ability to choose what to do with that wealth after all. But in the end, even the poorest has made choices. And morality is most basically about our acceptance of that.

We choose to take life in order to eat and thus to continue to live. This choice is made easy for us because we psychologically feel that the lives of those beings we eat are not the same as our own life. It is harder when the life is an unborn child and the need is not just to slake momentary hunger but rather the need to choose one's path in life. It is harder but both take away life.

Choose well and know that there is a cost.

You do not eat without the deaths of others. Only arrogance can claim that those lives--even the lives of radishes--are less important than your own. You accept this. You eat anyway and you try to live without needlessly taking life. That is all. You have no need to judge the choices of others in this question, which is ultimately between each private person and their gods.

Learning interconnection: Where did we go wrong in trying to eradicate racism through education?

"She's kind of brown!" my daughter's friend from first-grade giggles, holding her hands over her mouth. 

My daughter giggles along with her, but covers her drawing with her hand. I'm glad to see my daughter adding realistic skin tones to her drawings, but also frustrated at how quickly she is getting an embarrassing reaction from peers. What are the chances she's going to draw a brown-skinned figure the next time she draws with a friend?

We live in the Czech Republic where political correctness and multicultural education has never been a societal or political priority. Until recently, I had difficulty explaining the confused and even outright racist comments of many Czechs when writing for American readers. Even last summer, comments on my posts about racist or ableist problems in the Czech Republic were met with shocked disbelief. 

But this past winter that has changed for painful reasons.

Creative Commons image by Guilherme Jofili

Creative Commons image by Guilherme Jofili

Jewish landmarks have been vandalized in the US. The winning presidential candidate called Mexicans "rapists and criminals" and publicly mocked a disabled journalist. The numbers of people killed by white supremacist vigilantes because they are or were mistaken to be of Middle Eastern background grows every other day. And of course, there hasn't been this open a display of racism against African Americans or Native Americans in decades.

We are no longer shocked by what used to be almost unthinkable. We thought our system of multicultural education was enough, that general social norms had shifted and that racism, ableism and faith-based discrimination was fading, if not entirely gone.

We've been rather rudely awakened to reality as Americans. The situation begs the question. If racism is still so alive and well in the US after so many years of celebrating Black History Month. teaching a unit on the Holocaust and a chapter on Native American history in elementary school, where did we go wrong and what should we do differently in the future?

I have thought a lot about these issues for the past ten years because I have been living in a country where racism is much closer to the surface and I am the adoptive mother of children who are among the primary targets. Their situation is like being an Arab Muslim in America. I worked as a journalist for years before I adopted children and I knew very well what I was getting into. I had seen Romani children harassed in schools, segregated by teachers and sometimes physically attacked.  I had seen them bravely and cheerily go off to first grade only to be beaten down and in complete despair by third grade. 

I knew that if I made my family this way, I would have to deal with the issues daily. I would have to educate teachers, schools, other parents and even my children's classmates. I have now begun that work, talking to teachers and volunteering to do multicultural education in the schools. The situation is so tense that I am lucky to be allowed to broach these subjects in a classroom at all. 

I know that my efforts are too little alone, but my experience has given me some understanding of what can actually change attitudes. Here then is my recommendation from the trenches on what can and should be done to provide real diversity education: I call this model "interconnection education."

Creative Commons image by Oregon Department of Transportation

Creative Commons image by Oregon Department of Transportation

  • Start in preschool. This is the time for multicultural exposure programs. Use holidays and events from various faiths and peoples to create a lively and fun multicultural curriculum that will serve students well both in understanding the society they live in and in future history and geography courses that are crucial to general education and responsible citizenship.
  • Require teacher training in bullying-prevention, understanding the roots of prejudice and cultural sensitivity from preschool on up. In designing such programs both the perspectives of people of color and of those who have experienced a shift in understanding from isolation to diversity must be heard in order to design programs that are both sensitive to vulnerable groups and accessible to those without much experience in multiculturalism. A moralistic "we are multicultural because we're not bad racists" approach may silence prejudice temporarily, but it will not erase it from the classroom or from society. Teachers must be the first to understand how interconnection works and why we take these issues seriously is a matter of self-preservation.
  • When conflicts arise between children over sensitive cultural, racial or faith-based issues, avoid an immediate punitive reaction and call parents from all involved sides in to discuss the issues with involved children and trained teachers present. Be staunch in support of vulnerable groups in these situations, but ensure that complaints by parents and students of majority groups are addressed fully rather than being quashed and swept under the carpet without discussion. We will not solve prejudice by labeling those who have less cultural experience as bad and further isolating them.
  • Many holidays are primarily religious and so they are a difficult point in non-religious, diverse schools. There is always the issue of holiday programs in elementary school. We want our children to experience community holidays and yet it is logistically difficult to include the holidays of all groups. One way to ensure a better balance is to focus on a given holiday fully for a day and move on to another the next day, rather than spending weeks on majority holidays. Another way is to have a general seasonal holiday program and assign students or small groups to learn about and reflect a holiday from a particular culture through art, costumes, food and song that can be shared with the rest of the class.
  • While holidays extend beyond the individual and thus must be dealt with by the group in some way, individual differences that point to culture, race or faith must be allowed expression by individuals. There have been extensive arguments about the wearing of garments required by one's faith in public schools. One argument is that allowing, for instance, Islamic head coverings for girls promotes the oppression of women. If other parts of the program are open and diverse, it must be noted that whereas it is possible that a girl might be pressured to wear religious clothing by a family, being included in a diverse school would certainly provide greater multicultural education than a requirement to conform to a dress code would. I still see no reason for the restriction and significant harm can come from imposing it. In many other cases, the wearing of identity-specific jewelry or other symbols is simply a means of ensuring confidence and should be encouraged rather than discouraged. 
  • In elementary school and high school, diversity education need not be a separate program. It should be an integral part of language arts, social studies, history and geography programs. If we hope to have a democratic and multi-racial society and if we hope to weather the currents of international relations as a nation, the next generations must have an understanding of history and geography that is balanced. rather than focused through the lens of immigrants to our nation from one particular continent and their struggle for freedom from Britain. Each piece of the puzzle that is history and geography should be set in its context. History is not about blame or victimhood, but rather about an understanding of social, economic,religious and political currents that affect us today. Historians from a wide variety of backgrounds MUST have real and active input. A balanced account of history would require significant changes in history textbooks and teacher education. But it is crucial. Without that our current troubles will recur. 
  • In each of these tactics it is crucial that we recognize the need for identity concepts for all students, not only those from backgrounds outside the majority of a given community. A healthy sense of one's own cultural roots and appreciation for one's traditions as specific rather than "the way everyone does it" is the best defense against resentment of other groups. Students should recognize specific origins within larger continental or racial backgrounds. Africa is not one culture, any more than Europe is. People of European descent differ in cultural perspective, just as various groups from Africa differ. An understanding of culture as the complex ecosystem in which the various parts move and affect one another will go a long way toward practical understanding in the social sciences as well as diversity education. In music, language and art, students should be encouraged to combine cultural influences consciously rather than by automatic cultural appropriation and learn about the natural mixing and divergence processes of human history. 

Clearly these methods and strategies are far beyond our current capabilities. We must have clear-eyed goals. We can also use the concepts of this type of "interconnection education" even on the smallest scale. 

One of my current projects in this direction is the Children's Wheel of the Year series. This is a set of books aimed at families in the earth-based or Neopagan traditions. This is the fastest growing religious group in the United States and Europe and in many areas has more adherents than more widely recognized groups such as Buddhists. This is also a group struggling internally with racial and historical tensions. 

The stories in the Children's Wheel of the Year series are first and foremost engaging and fun for children. High quality educational materials are those that encourage learning through genuine interest. Secondly, they provide a realistic, modern view of how families in the swiftly growing earth-centered religions may celebrate eight major holidays. Each holiday embodies important cultural and ethical values that are important to the adventure story of the book. 

Throughout these stories there runs a common thread of interconnected diversity. While the stories focus on one particular faith, they are inclusive and irrepressible in the joy of connections to others and supporting others in their own strong and unique identities. The Children's Wheel of the Year attempts to provide a model for addressing specifics within an overall interconnected diversity program.

The story Shanna and the Pentacle specifically addresses the issues of multicultural and diversity education in the schools, while focusing on a practical issue many earth-based families report encountering in the United States--namely the banning in some schools of pentacle jewelry. While this story addresses a difficulty encountered by one group and the responsible methods children and adults can use to solve such difficulties, it does so while bringing the reader closer to the perspectives of other cultures in the story, emphasizing the need for mutual support. 

Our need is clear. We must foster an interconnected openness and the strength of diverse identities in our society and in our schools. No matter which group we belong to, we need this and our safety depends upon it. If any group is marginalized or denied expression of their identity, we know it is only a matter of time before that same marginalization and denial is visited upon others. 

Blind humor: Living with a sighted person

I break from work in the afternoon and go downstairs to brew tea for me and my mother. The electric kettle sputters and pops with a comfortable, homey sound.

I reach up to the second shelf and snag a couple of pottery mugs. My thumb and ring finger go around the handles and my forefinger and middle finger each go inside a mug. It's a quick grab and a secure grip. 

Image of Arie Farnam with long light-colored hair unbound and eyes closed as she looks into a fire at night

Image of Arie Farnam with long light-colored hair unbound and eyes closed as she looks into a fire at night

The mugs clink as I set them on the counter but then I feel the grime and stickiness on the inside and I pick them back up again.

"We need to check the spinning arm in the dish washer again," I tell my mom, as she comes in from her painting work.

"Whatever," she says with emphasis. "They look clean to me."

We've had this conversation a thousand times and I try not to bristle. I try to remind myself that it isn't exactly that she doesn't believe me. It's just a different way of looking at the world.

"There are fairly large chunks of greasy gunk inside the cups," I tell her, while I scrub and then add soap and scrub some more to get the super-heated dishwasher sludge off of the inside of the mugs.

"I believe you," she says. "It's just that if it looks clean visually, I don't care." 

I bite back a retort about how bacteria don't care what she can see and put the newly washed mugs out to pour the tea. 

This wasn't a crucial or dramatic incident nor was it the straw that broke my back. But it was telling and clear. I suddenly realized that there is an art to getting along when we see the world differently. And so, I started mulling over a list of tips for blind and partially sighted people who live with a sighted family member or roommate. 

Some of the common issues can be humorous, but I do mostly mean what I say.

Image of a red tea kettle blowing clouds of steam - Creative Commons image by Benjamin Lehman 

Image of a red tea kettle blowing clouds of steam - Creative Commons image by Benjamin Lehman 

Tips for living with a sighted person:

  1. As noted above, dish washing and other things requiring attention to invisible hygiene are not their strong suit. When I pick up a mug or a spoon, my hands automatically inspect it, I suppose just the way a sighted person's eyes do. But my hands detect a lot of crud that a sighted person's eyes don't. Sighted people are, however, excellent at dusting shelves, vacuuming and mopping floors. Divide up household tasks based on each person's strengths to minimize the need to correct and the incidence of food poisoning. 
  2. Try not to lose patience with their vague sense of location and statements such as "It's over there." Remind them gently to use specific words, and set a good example by giving them cues they can follow when directing them to find objects. This generally means referencing a significant physical object that they can see when you are giving them directions. Don't say for instance, "Your keys are at four o'clock three feet ahead of you," because they will often find this too technical and confusing. Instead say, "Your keys are behind the coffee pot." I know it may feel counter intuitive, but this can ease communication.
  3. It is a generalization but also often true that many sighted people have poor organizational and memory skills. Due to their reliance on visual cues they haven't exercised the muscles of memory and categorization. This is a common sticking point in household conflicts because sighted people have difficulty using organization systems for clothing, cooking utensils, spices, paperwork or household clutter correctly. Again patience is needed. Explain the need for the organization systems that keep your home running and which keep them from having to do all the housework and cooking without your help. Then remind gently and avoid a critical or irritated tone as much as possible.
  4. While floor clutter is related to the point above, it deserves its own point because of the potential safety hazards. Your home is one place where you can move around freely and quickly. Floor clutter destroys your sense of home and makes the daily routine difficult and even dangerous. Sighted people, particularly children, create floor clutter without even noticing. Believe me when I say that it is not specifically intended to hurt you. It is just more of their difficulty with organization and location concepts. Place a large box in an out of the way corner and then unceremoniously dump any and all items found loose on the floor into that box. When someone is looking for lost items, mention the box and patiently repeat guidance on organization and safety. 
  5. Be clear about personal space. Though it may be fashionable today to have a relaxed atmosphere around belongings and space, your time has better uses than searching for the scissors your family member or roommate put "right back" on your desk... two feet from where you keep them. Don't let this one slide. But as usual, exercise patience. It is genuinely difficult for sighted people to grop how exact they must be in returning things they have borrowed from you or moved while in your personal space. Generally it is good to enforce a rule that your things are not to be touched or moved at all. Have your own pair of scissors and all other handy household items. Then enforce a hard and fast rule that yours can only be borrowed in cases of emergency and then must be returned to your hands, rather than to the place the sighted individual believes is correct. 
  6. Childcare deserves a couple of special notes. First off, it's clear that children can create a lot of clutter and chaos. This is their natural state. Get child locks on everything and put everything up high for as long as possible. Then as children get older, use the same principles applied to sighted adults with an extra dose of patience. Sighted children are actually more likely than sighted adults to fully adapt to your home and abide by the house rules, because if they are growing up with you, they are more likely to learn the same skills you do and accept them as normal.
  7. On sharing childcare with a sighted adult: With small children safety is your top priority, but you've heard the phrase, "out of sight out of mind." Sighted people really mean it and especially when it comes to children. Some particularly annoying sighted people will question your ability to "watch" children and keep them safe from visible hazards. (Sarcasm and irony are much more helpful, not to mention legal, than aiming your fist at the place where their noise is coming from. But I digress.) Society and the media has trained them to believe that they, not you, are better equipped to keep children safe. Don't buy into this or your children may suffer from preventable accidents. Just because a sighted person is present, don't assume they are paying full attention. If you hear a match strike, batteries clatter or a chewing sound from a toddler who isn't supposed to be eating, always investigate. The child might well be hiding under the table or just around a corner and a sighted adult may not notice because they don't pay much attention to sounds. I can't tell you how many times I have relieved a child of choking hazards when sighted adults hadn't noticed, not to mention the three times I've pulled a drowning child out of water before sighted people reacted. The general rule is to keep alert at all times with small children.

I have written this with the hope of bringing awareness to the issues. I don't wish to give offense to anyone

There are many articles in the online and print media detailing what it is like to live with a family member with a disability. Some are meant to educate the general population and others offer necessary practical tips for families. I'm not against these articles. I do believe there are particular issues for people living with a person with a disability and good advice that can be exchanged with others with a similar living situation.

However, I couldn't resist telling how it is from the other side of the equation.

I wish you all luck and harmony in your homes.

"Virtue signalling" versus "This is my life"

I go pick up my six-year-old son from kindergarten and he says a big kid from another class chased him and hit him repeatedly on the playground. Then he says another kid is calling him a racial slur.

I delicately ask the teacher if there have been any issues, and she explodes at me. "I don't want to hear it! I know for a fact that if there is any conflict, then your son started it. I don't care what anyone saw or what he says. He did something first. I know that. It's the way he is. It's in his background." 

Image by Arie Farnam

Image by Arie Farnam

I should have known not to bring anything up with this teacher. The other teacher swears my son is no more rambunctious than any of the other boys. She says they're all difficult. But mine is the only one not considered "white" by the standards of the country where we live.

He hides behind the shelves in the kindergarten boot room, eyes wide and mouth trembling. That night we have the discussion I've been dreading. Sex? Are you kidding? Imagine being afraid of discussing the birds and the bees!

Parents of black boys in America know this discussion though and I wonder if they dread it as much as I have. It goes like this: "I know it isn't fair, but for your own protection, you must never ever hit back. They will judge you more harshly because of the color of your skin and eyes." 

Again. this is kindergarten.

After the kids are in bed, I get online. It's work but it also involves blogging and discussing issues with people around the world. One of those issues is the ban on people from seven majority Muslim countries entering the US. And someone throws the accusation of "virtue signalling" at me because I express support for refugees who are affected by the ban. 

Initially I didn't even know what the epithet meant, I've been out of the country so long. But I looked it up and the gist of it is that I'm white so there is no way I could really be against racism and Islamophobia. I just say I am in order to "signal" how "virtuous" I am in an attempt to avoid anti-white backlash. So goes the logic of smug white commentators.

The absurdity of the past two weeks is staggering. I pride myself on being able to engage "the other side" with compassion but, dear goddess, how do you communicate across this canyon? 

If I tried to explain my day to the "virtue signalling" slinger, I might as well be speaking Urdu. 

I don't claim to know what it is like to be Black or Muslim in America. But I do have this little window into the issue of race because of the fluke of weird Czech attitudes toward ethnicity. I get enough of a window to know that I'm not experiencing the full extent of it by far.

And here's what my week is like:  

Refugees - Creative Commons image by Steve Thompson 

Refugees - Creative Commons image by Steve Thompson 

A gay lawyer friend and I helped a disabled immigrant with housing and paperwork the other night. After all, he was one of only a handful of people who stayed on a tough job with us one time. Then I go downhill skiing and I steer primarily by the sound of skis scraping on either side of me. I miss the days when I had a guide for blind skiers.

Then I come home and my good friend born in Syria who I've known for fifteen years and who ten years ago married an American and moved there is worried about whether or not she'll ever see the rest of her family again. (Oh, and her family is Christian, as are more than 20 percent of Syrians). I wish I could hug her long distance. I wish I could do anything but feel helpless.

I plan to go for a weekend to the home of the transgender friend with kids who I didn't used to know is trans. I have a short and pleasant Facebook conversation with a colleague I once went through a war zone with, who is also a Muslim and a former refugee. I'm glad to know he and his family are safe and well. Then I go out in subzero temperatures to feed animals and water overwintering plants in the urban homesteading that keeps our carbon footprint low.

When I say I am against racism, homophobia, ableism and other forms of bigotry and when I say I care about humanitarian and environmental issues, I'm only standing up for myself, my friends and my family just as you would if the storm troopers were at your door. 

Now I hear that there are protests in airports against the immigration ban for people from those seven countries which have lots of Muslims but oddly not nearly as many terrorists as the countries not banned. There are crowds of people standing on guard while Muslims pray in US airports.

I'm glad there is this outpouring of support for people who have had it rough for many years and who have generally suffered through it in silence and alone, trying to be nicer and less physical than everyone else, even while they were attacked, so that they wouldn't be labeled as "aggressive Muslims."  

I can't help but remember a trip back to the US five years ago. I was standing in an interminable security line with my kids--then no more than toddlers. I finally reached the point at which we were to enter the machines and checks and I noticed a family standing near by outside the line.

"We'll miss the flight," the woman said quietly but I heard. I am legally blind but I also made out the scarf around her head, wrapped in that way that I know usually means a Muslim. Her husband and two small children stood pressed near her, but he said nothing. All of their faces were a deep golden brown, likely with Middle Eastern or South Asian background.

I thought I understood. They had been held up and knew they didn't have time to stand in the line. Many other people would have begged to be allowed to cut in line, and with small children most would have been allowed. But they were too terrified to draw attention to themselves. 

I made a quick decision and stopped inching forward. Then I beckoned to them to join the line. The man's head jerked up and I thought he must be amazed, even though I couldn't see his expression well. The woman pushed him forward a little and the slid into the line in front of my kids. I heard a rumble behind me, coughs and someone pushed me roughly from behind. There were some coughs but nothing overt, yet.

My heart hammered in my throat. I am not a coward about most things but I have had plenty of reason to be afraid of public judgment and crowd disapproval. I whipped around, ready to defend myself and thrust my white cane, which I carry in confusing environments like airports, even though I can walk without it out to the side and demanded of the people behind me in line, "Have you got something to say?" 

The crowd stilled and I turned back around, the back of my neck and head burning as if their gaze could light me on fire. Still I felt a thrill inside. I had managed it. The Muslim family moved off quickly with only mumbled thanks. I gained no public approval or virtuous status that day. I did gain a bit more courage to act on my conscience, even when I may be publicly judged however.

This isn't "virtue signalling." This is my life. These are my people. You slander and malign them or you threaten to take away our basic rights, you ban people of another minority faith even if it isn't the exact same one as mine or you mock someone who shares a profession AND disability status with me, and you are much more likely to see my not-so-virtuous side. 

You belong on the earth

I doubt there has ever been a time in history when more people in more varied walks of life have been labeled and told they are unwanted or don't belong. 

I know many people are hurting deeply right now for reasons of life and death, separation from family and elimination of basic freedom. It can feel like other groups who have merely been mocked, degraded or threatened are not in the same boat and that they do not understand the gravity of the situation. 

Creative Commons image by Matt Drobnik

Creative Commons image by Matt Drobnik

We don't all understand every part. We don't all know what it is to stand in one another's shoes. But we do have more in common than we have misunderstandings. 

Your experiences are real and you are not alone. 

And yet it has become unfashionable to have a group identity. We love individuals and we don't like being pigeon-holed. We may be part of one culture, ethnicity, faith, group or class but we are rarely "typical"  of that label and we simultaneously belong to others.

Our media culture idolizes the person who refuses to associate with a group. We have also become educated enough to know that each identity is unique.

I love non-conformity as much as the next person, but too much exceptionalism has its costs. Now when so many of us are truly threatened, we spend precious energy arguing among ourselves and debating who has a greater right to outrage.  We disagree about trivial things or the specific solutions to our problems and thus we don't address immediate threats together. 

At least that's how it has gone down in the past.

Right now there are many groups forming and fluctuating. Membership in both the KKK and the ACLU have skyrocketed. Lines are being drawn and often they are based on an ideology or a particular identity. I personally support the ACLU and other organizations like Greenpeace, the NAACP and Doctors Without Borders. But the point isn't exactly which groups I want to support (as long as it isn't a racist, terrorist or otherwise harmful group)..

We also need broader places where all those who have common interests can belong. 

It isn't so much the strength in numbers that I want. We need a sense of common cause and solidarity. True belonging comes not from the accident of your birth, culture or label, but rather from your choices, values and convictions.

It is time to set down the most basic tenants of what we belong to, the lines which we won't cross and which enclose all of us. This must be at once broad enough for all and clear enough to mean something.

Here are some ideas of where we belong:: 

  • We are open to all races, religions, ability types, sexual orientations, nationalities, ages and appearances.
  • We recognize the right of people to express their identity and culture, to have a voice in public and a connection to their land and people.
  • We know that power entails responsibility.
  • We speak up when we or others are prejudicially attacked or stereotyped.
  • We are concerned about ecological issues and we respect the earth which we depend on for our lives.
  • We take whatever action is feasible and effective in our personal situations to protect the earth, water, air, other species and one another.
  • We recognize that facts exist and can be documented, while context can consist of many facts.
  • We believe that people have a right to true information and that money and incorporation should not accord greater rights to any individual or group. 
  • We insist that the resources of the earth are held in common and must not be exploited for the profit of a few.
  • We believe each person has the right to freedom that does not harm or restrict others.
  • We strive to be kind and welcoming toward newcomers and to work out differences respectfully.
creative Commons image by Matt Drobnik

creative Commons image by Matt Drobnik

There will necessarily be some who haven't explored all of these issues in-depth. But we should be able to agree on the basic values of inclusion and protection of that which sustains our lives.

Still there will be some who choose to reject these values. I have been part of many ecological or earth-based groups and some of them do not hold the same values of openness toward people of different paths and backgrounds that I demand. On the other hand, there are also many groups that are concerned with social justice but don't take the immediate crisis of climate change seriously.

:Environmental concern and the love of diversity are deal breakers for me--two things I simply cannot do without.

Don't get me wrong. Groups can specialize. Not every parenting group must be focused on environmental issues as well as parenting. But I can't feel truly loyal to a group that openly expresses their disregard for environmental concerns, anymore than I can feel welcome in a group with borderline racist statements, no matter how good they are on something else. These are life and death issues that can't be compromised. 

I have no problem with the fact that Facebook groups connected to Black Lives Matter are unlikely to be regularly posting about climate change. Many groups accept these values but focus on one particular need.

I don't demand that environmental groups spend time and attention on anti-racism stuff. However, I could not very well put my loyalty in a multicultural group that irrelevantly professed disdain for tree-huggers and climate scientists, anymore than I can feel comfortable in an earth-centered group that occasionally throws up closet racist posts.

This isn't to say that I will only join groups that agree with all of my opinions. Far from it.

I have an abundance of opinions. I still love Star Trek after all these years, my favorite pizza involves lots of really hot peppers and seared garlic, I think J. K. Rowling is a damned good writer but the seventh book had some issues, And I think dish rags should be changed about every three days.

Those are opinions. And I don't expect members of a group I'm in to agree with them. And that extends to more relevant opinions too. I have my views on economic systems, health care and electoral processes. But these are things we can work out. What level of gun regulation we should have is debatable. I can and have had informative discussions with people who disagree on things like that. 

Therein lies the distinction perhaps. I don't think there is room to casually debate whether or not we'll believe in science and facts or whether we will accept all people of every religion and color. Those who agree on these things need a place to belong where we can learn from the rest of our differences without being constantly bogged down by an inability to agree on ground rules.

That is why I have founded a group called Belonging on the Earth. It is small and not diverse enough as of yet. I hope you will join and find it a welcoming community. Currently the group is starting on Facebook. You can join it here. I am the administrator for now and I can ensure that it is a safe and respectful place. This is a group for those who agree on fundamental values but may not agree on many other things. As the group grows other administrators will be added who can help to foster the openness of the group.

Not everyone is into Facebook and eventually there will be other ways to belong to this community. If you can't join the Facebook group, I encourage yo to join my hearth-side email circles below and keep in touch through the comments on this webpage.

You belong on the earth. Your experiences are real and you are not alone.

Stand with those under attack: A simple gift you can give for free

There are a lot of messages out there at this time of year aimed at getting you to give to good causes. And many of those causes really do help people--ensuring that hungry people eat, refugees receive shelter and sick people get care. 

It is very gratifying to have enough to give materially. But maybe you are not one of the people who can. Or if you do give materially, you may want to give in other ways as well.

Creative Commons image by Fdecomite of Flickr.com

Creative Commons image by Fdecomite of Flickr.com

Right at the moment, many people are feeling that the future is bleak. There is sorrow at every turn and a looming sense of potential disaster. It is easy to become pessimistic and resort to hunkering down in our own homes, hoping the storm will pass us by.

I've been feeling that way myself and fighting for inspiration in my writing. It's humbling that the answer came to me from my younger brother.  And he probably has no idea he proposed something so actionable. 

Here's how it happened. My brother said he was going to write a letter to the local newspaper. I'd heard him saying how concerned he is about the rise in vocal racism and the apathy of many others to respond. He used to be quite idealistic and recent events had brought him nearly to tears. He's also living out in a rural area that voted nearly 70 percent for Trump, so what options did he have?

I thought I knew what to expect of his letter to a local paper. He's diplomatic, but still I thought he would try to talk some sense into his neighbors one way or another.

He did a bit but he also put something else in his letter: "I invite immigrants into this community. I will protect you physically and emotionally... People of color, people who look different, act different, are different are welcome here in this valley."

I've heard many people say they want to stand by immigrants, people of color or Muslims. And that's nice and all. But mostly we are saying these things in our bubble, whether it's on Facebook or among friends. 

We're not only not persuading anyone not to be racist, we aren't even telling the people in need of support about this. But my brother hit on a good idea, a new spin on writing letters to local newspapers. Don't write to persuade people who probably won't listen to an opposing view. Don't write to officials who aren't going to change their policies.

Instead write your letters to the people who are now living with the greatest uncertainty and fear. Address them directly.

Think of Christian refugees from Syria celebrating their first Christmas in the United States while being harassed for being Arabs. Imagine a Muslim child learning to read English opening up the local paper for homework and finding your letter. Then write with that audience in mind.

Creative Commons image by the Oregon Department of Transportation

Creative Commons image by the Oregon Department of Transportation

Tell your friends and imagine a flood of such letters. 

I welcome you. I stand by you. I am a friend. I want to have people of color, people speaking different languages, Muslims, Jews, Christians, Pagans. Hindus, people of varied gender identities and people of all shapes, sizes and talents in my community. We would miss out, if you were not here. We would be poorer and our town would lack its interest and sparkle. I want you here and I will say it openly. I won't be silent if there is hate speech or hateful policies. I am sorry for these terrifying times. I, for one, stand with you. 

There are a great many of us who agree with these statements, but we mostly say them to each other. Let's say them to the people who feel excluded and attacked. Let's start a campaign of letters to our communities, rather than to officials. 

Go ahead and make it specific. Write to foreign students or immigrants or women who have undergone an abortion or people with visible and invisible disabilities or the quiet people of non-Christian faiths who repeat "Merry Christmas" cheerily without ever hearing their own holidays mentioned. 

You will touch someone deeply, almost certainly make someone's day or week. And if enough of us do it, you will also open the hearts of others who may need to look beyond their personal experience to believe in good people of every kind. It doesn't matter if you are also personally one of the people affected by the uncertainty. There is still someone out there who will be glad to hear you stand with them.

A holiday letter seems like an overly simple thing to give. But under some circumstances it can be a great gift.

And thank you for reading my writing this year. I wish you comfort, simple joy and shared love in this season.

Surviving the new reality

Rain drums on the roof as I write. I am on enforced rest. Doctor's orders. I could cry for joy over the rest, except that the eye surgeon has forbidden me to express intense emotions. 

But you get the idea. I don't feel sick but I'm supposed to stay inside, keep warm, not work much and be at peace. I know, I wish I could spread it around a little too.

The only downside of this is a feeling of vulnerability that comes with the isolation.  I hesitate to venture out much, even on-line. I am a bit breakable and the world has suddenly become doubly harsh.

Creative Commons image by Sepp Schimmer

Creative Commons image by Sepp Schimmer

I saw a post from an old work colleague about attacks against people of color in the US. I wrote in a quick reply of support and bittersweet humor. And instead of solidarity, my old office-mate lashed out at me, labeling me an "sheltered white expat." 

I instantly had the urge to fight back. I'm not one who takes things lying down or turns the other cheek. Sure, I'm white and I know better than many white people what privileges and protections that entails. I am highly aware when I meet police officers that I am wearing the backpack of white privilege--then and many other times. I also know that when any country is in the grip of fear that there is an understandable anger toward emigres--those who left, no matter how good their reasons. 

On the other hand, I'm also a person with a significant physical disability. I'm up against the wall in this too. My children are not white and they are newly naturalized citizens. Will we ever be able to go back to visit my home and family again? That is not an idle question in these post-election days. We are also in a country (the Czech Republic) that Donald Trump has pledged to put a military base in. We are isolated for the moment, but far from off the hook. 

Still, I bit my lip and said none of that. I know well the furious emotions raging in my colleague's post. I replied only to express more simple and direct support for her. I told her I am an ally and I understand her words. She and another friend continued to express anger and rejection toward me. There was no reconciliation. 

I am worried.

I'm saddened to lose a connection to someone I enjoy simply due to these terrible times. But I am even more worried by what this negative interaction among allies means for our people--the people of our country, citizens and non-citizens, all cultures and all backgrounds. We're stuck in this together, after all. 

My home county in Oregon reportedly voted 67 percent for Trump. There are people I call friends who did and likely even a few only moderately distant relatives. And if I cannot meet a friend who agrees with me in support and solidarity, if we are so divided that I am the enemy even when I am not across the political divide, how... oh gods, how will we live with those who really do hate and choose a hateful leader? 

Let's take a moment to forget that Trump even exists. 

Sigh. Now doesn't that feel better? 

But wait a minute. There's a problem. We've made Trump disappear but we haven't made the many people who vehemently support him disappear. Sure, we can say they are a minority, as few as 20 percent of the nation and not even most of the voters. But they are enough and we have to live with them, Trump or no Trump.

I have always felt this because of where I grew up, far from the cosmopolitan and high-thinking coasts. I love visiting Portland, Seattle, New York or Francisco for precisely this reason. Our bubble of acceptance and freedom feels so good. 

But we forget that this is not all of the nation at our peril. We ignore rage at our peril. We belittle politically incorrect antagonism at our peril. We've seen that now.

I know it is hard to think about surviving the next four years. But we will... most of us at least. And here is how I propose to do it:

Creative Commons image by Peter Roome

Creative Commons image by Peter Roome

  • If there is a registry for Muslims, get on it. I'll be a Muslim on paper.  If we're all on the list, the list will have no teeth.
  • Talk to Trump supporters. Really talk and listen. Listen to what motivates them, what they are upset about. Share your thoughts with respect and without contempt.  They are people and most people are susceptible to change, even if slow change.
  • Promote facts, everywhere, over and over again. The media will not help, so we have to do it. Talk about facts, post them, remember them, make lists. Don't let up about climate change.
  • Explain white privilege, primarily if you're white. Explain it again and again and again until you're sick of it and then explain it to more people. There is no way we're as sick of explaining it as Black, Hispanic and Native American people are.
  • Talk to the person no one is talking to at a gathering. Invite the disabled colleague or classmate to whatever. Connect. 
  • Make your circle bigger. Whatever it is you can give easily, put it in. Got a neighbor with younger kids who could use some of your nicer used clothes? Got extra veggies from the garden? Got wood or materials or whatever? Buy less, trade more, reuse more. Gain your security from community.
  • Take care of your own basic needs with as little resources as possible. Reduce plastics and fossil fuels in whatever ways you can. And remember you'll do more and better if you're rested, healthy and fed. Don't wait to be taken care of. Stand strong, think ahead, link arms.

My hope is with you.